Sarah’s Myeloma Blog

Hi,

Just a quick line to say Tom is now married (last Sat) and he and Jem have moved into their house. It’s been very tiring getting this far, but such a happy occasion! It went brilliantly well and I even managed a few dances! I intend to post some pics just as soon as I can work out how to do it!! Will update properly soon.

Hi everyone. So sorry that I haven’t done an update for so long. Various people have nagged me in Xmas letters so I thought I’d do a swift update and then write a little more in the next week or so. I am fine at the moment, and not due back to see the consultant until very early Feb. Also, I have just been told that my retirement to ill-health has been approved, which frankly I wasn’t expecting. It won’t be much, but will remove me from this strange limbo state and make me officially retired. I can move into the retired teachers’ section of the NUT!!

It is a bit sad in a way, but I will have to move on and make a new life for myself. I have been very active with my TU and political work, but can’t spend all my time in front of the computer and sending angry letters to the paper! So I must find other creative outlets which I do for my own pleasure (or so says my psychologist, and I think she’s right).

BTW, there was a very good article in the Guardian the other day by a guy who is a journalist, left-winger, my age and myeloma sufferer. I wish I could have written something as good. It’s about the constant use of war imagery in the fight against cancer and the need to empower patients: http://www.guardian.co.uk/commentisfree/2009/dec/29/war-fight-cancer-empowering-patient. Please read it if you have time.

There are lots of family issues to keep me occupied too, with Tom and Jem getting married in Feb, Bob’s Nan reaching 100 shortly and sadly, the illness of his dad (asbestosis).

I haven’t got time for more right now, but will try to write more soon. Keep well and have a good 2010!

Just a quick post as I lost all my last post due to this dongle!!

In hospital, have had high dose chemo and transplant of cell. Felt very grotty with nausea and some diarrhoea. Didn’t get home as Bob had a cold too. Bit better now but very very tired!

May be able to post more in next day or so. Hope you are all OK.

It does look as if the comments are working now. To make one: if you click on the page or post you want to comment on eg ‘Comments on my blog’, you will see it says just to the right of that title  ‘2 comments’ (or no comments or however many have been made). Click on that and boxes will appear below. You just need to put in your name and email (website not needed) and then type in what you want to say in the box and submit. It’s a long business learning how to do this for us novices!

If you want to comment, you should be able to do so now. We’ve been fiddling with the settings to make it easier, although if spam starts to arrive, we’ll have to make it harder to comment without prior moderation. Remember that your comments will be seen by everyone!!! So don’t write anything you don’t want seen by others. We’re still working out how to do all this, so if it doesn’t work, send me an email to tell me.