Comments for Sarah's Myeloma Blog http://www.edweb.co.uk/sarah Myeloma, a cancer caused by plasma cell growth in bone marrow Tue, 07 Sep 2010 19:56:56 +0000 http://wordpress.org/?v=2.7 hourly 1 Comment on Back on the treatment by Jane Sault http://www.edweb.co.uk/sarah/?p=377&cpage=1#comment-714 Jane Sault Sat, 21 Aug 2010 13:10:39 +0000 http://www.edweb.co.uk/sarah/?p=377#comment-714 I'm really pleased that your bones and kidneys are doing well but what a bummer that it's come back. I'm glad that the new drug has offered some hope. Geoff and I have been to Devon for 2 weeks. My sister and a friend joined us for the first week and then it was just us - lots of walking, art galleries and cake shops! Katy and Will are at the V-Festival this weekend. I took Katy and her friends - nightmare journey as most of the motorway network was clogged up with festival traffic. Good Luck Sarah. As ever, I'll be thinking of you and Bob, Jane x I’m really pleased that your bones and kidneys are doing well but what a bummer that it’s come back. I’m glad that the new drug has offered some hope.

Geoff and I have been to Devon for 2 weeks. My sister and a friend joined us for the first week and then it was just us - lots of walking, art galleries and cake shops! Katy and Will are at the V-Festival this weekend. I took Katy and her friends - nightmare journey as most of the motorway network was clogged up with festival traffic.

Good Luck Sarah. As ever, I’ll be thinking of you and Bob, Jane x

]]> Comment on Ticking along by Martin http://www.edweb.co.uk/sarah/?p=373&cpage=1#comment-383 Martin Sat, 03 Apr 2010 12:51:57 +0000 http://www.edweb.co.uk/sarah/?p=373#comment-383 Hi Sarah, Thanks for your encouragement. Sorry have been out of touch, still thinking about you and am glad you are able to enjoy some nice stuff for change. Paris sounds great. Just keep on keeping on. All the best, from a fellow 'boxer'. Hi Sarah,

Thanks for your encouragement. Sorry have been out of touch,
still thinking about you and am glad you are able to enjoy some nice stuff for change. Paris sounds great.

Just keep on keeping on.

All the best, from a fellow ‘boxer’.

]]> Comment on Tom’s wedding by Chris Dean http://www.edweb.co.uk/sarah/?p=350&cpage=1#comment-338 Chris Dean Thu, 25 Feb 2010 13:51:51 +0000 http://www.edweb.co.uk/sarah/?p=350#comment-338 Hi to you all, What great pictures. Glad to hear that things went off so well. It was lovely to meet up at Christmas - we will get in touch in a week or two when we get back from Dublin. Be sure to heed Jane's advice! Chris and Nicky xx Hi to you all,

What great pictures. Glad to hear that things went off so well. It was lovely to meet up at Christmas - we will get in touch in a week or two when we get back from Dublin. Be sure to heed Jane’s advice!

Chris and Nicky
xx

]]> Comment on Tom’s wedding by Jane Sault http://www.edweb.co.uk/sarah/?p=350&cpage=1#comment-337 Jane Sault Wed, 24 Feb 2010 19:15:31 +0000 http://www.edweb.co.uk/sarah/?p=350#comment-337 Hi Sarah and Bob, Really pleased that Tom's wedding went off well. Glad that you managed to enjoy yourself too, Sarah. Make sure you have some rest now! Jane x Hi Sarah and Bob,
Really pleased that Tom’s wedding went off well.
Glad that you managed to enjoy yourself too, Sarah. Make sure you have some rest now!
Jane x

]]> Comment on Happy New Year by Eva Faber http://www.edweb.co.uk/sarah/?p=346&cpage=1#comment-297 Eva Faber Sun, 10 Jan 2010 12:08:14 +0000 http://www.edweb.co.uk/sarah/?p=346#comment-297 Dear Sarah, I just wanted tp say hi and introduce myself. I've found it fascinating to read your blog. I'm the same age as you, have myeloma, have had a transplant in November '08 and am doing well at the moment. I'm also an ex-teacher and trying to adjust to the loss of my career. I live in Scotland, both in the Highlands and in Edinburgh. However I travel to London occasionally. The last time I went was a few weeks ago with my husband: one of his short stories had been used as a basis for a play -'The Fahrenheit Twins' and we had an amazing night out at the Barbican. I'm contacting you for two reasons. I'm curious about treatment options in London and have wondered whether in the long run we might have to shift there. I don't know whether there is a large enough myeloma population in Scotland to give me access to the best treatments. Secondly I'm also facing a period of re-adjustment and have embarked on a number of creative projects. I guess it could be productive to have contact with someone who is looking at how to spend their time post teaching. I wish you all the best - if you'd like to have some contact with me please let me know. Eva Dear Sarah,
I just wanted tp say hi and introduce myself. I’ve found it fascinating to read your blog. I’m the same age as you, have myeloma, have had a transplant in November ‘08 and am doing well at the moment. I’m also an ex-teacher and trying to adjust to the loss of my career. I live in Scotland, both in the Highlands and in Edinburgh. However I travel to London occasionally. The last time I went was a few weeks ago with my husband: one of his short stories had been used as a basis for a play -’The Fahrenheit Twins’ and we had an amazing night out at the Barbican. I’m contacting you for two reasons. I’m curious about treatment options in London and have wondered whether in the long run we might have to shift there. I don’t know whether there is a large enough myeloma population in Scotland to give me access to the best treatments. Secondly I’m also facing a period of re-adjustment and have embarked on a number of creative projects. I guess it could be productive to have contact with someone who is looking at how to spend their time post teaching. I wish you all the best - if you’d like to have some contact with me please let me know.
Eva

]]> Comment on All going OK by Jane Sault http://www.edweb.co.uk/sarah/?p=341&cpage=1#comment-283 Jane Sault Thu, 12 Nov 2009 08:34:17 +0000 http://www.edweb.co.uk/sarah/?p=341#comment-283 Hi Sarah. Hope you have managed to see a little bit of progress, albeit slow.If it's any consolation, we're all getting old so you're not on your own with restricted movement although I appreciate it's much more painful and tiring for you. It must be really annoying to hear about other transplantees who are up and about like nothing ever happened to them. Complete change of subject - have you seen the film 'The Imaginarium of Dr Parnassus?' It was the one Heath Ledger was filming when he died. It's so whacky - I'm not sure I totally understood it and haven't found many other people who have seen it to ask for their opinion. I'm sure it would have meant more to me if I'd been under the influence! (Terry Giliam was the directorand it has several Monty Python surreal image moments in it.) J x PS Hope that Tom and Rosie are happy in their new phases of life. Hi Sarah.
Hope you have managed to see a little bit of progress, albeit slow.If it’s any consolation, we’re all getting old so you’re not on your own with restricted movement although I appreciate it’s much more painful and tiring for you. It must be really annoying to hear about other transplantees who are up and about like nothing ever happened to them.
Complete change of subject - have you seen the film ‘The Imaginarium of Dr Parnassus?’ It was the one Heath Ledger was filming when he died. It’s so whacky - I’m not sure I totally understood it and haven’t found many other people who have seen it to ask for their opinion. I’m sure it would have meant more to me if I’d been under the influence! (Terry Giliam was the directorand it has several Monty Python surreal image moments in it.) J x PS Hope that Tom and Rosie are happy in their new phases of life.

]]> Comment on Sorry it’s been so long! by Martin http://www.edweb.co.uk/sarah/?p=335&cpage=1#comment-222 Martin Thu, 06 Aug 2009 07:31:17 +0000 http://www.edweb.co.uk/sarah/?p=335#comment-222 Hi Sarah, Glad to hear you are ok - hope you enjoyed your holiday. I have also recently 'retired' and I am just off now for my monthly check up. Will email shortly. Hi Sarah,
Glad to hear you are ok - hope you enjoyed your holiday.
I have also recently ‘retired’ and I am just off now for my monthly check up.
Will email shortly.

]]> Comment on Up and Down by Denyse http://www.edweb.co.uk/sarah/?p=328&cpage=1#comment-217 Denyse Sat, 25 Jul 2009 08:00:08 +0000 http://www.edweb.co.uk/sarah/?p=328#comment-217 Hi Sarah, sorry i have not been intouch recently. I have been inputing the boring old VAT. I think Rosie is right about being useful. It is the whole reason teachers take up the profession, to make a difference and be useful. As for early retirement, you will still remain useful. Just think of all those things you have always wanted to do but never had the time. I bet, like me you have lots of photos that have never seen the light of day? If you haven't got one already, create a montage for that wall that has always looked empty. I guess by now Bob is on summer break? We can not begin to imagine your lives but to the best of our ability you are always in our thoughts and you especially Sarah are an inspiration to us all. Take care Lots of Love Denyse and Tony (Hopkins) Hi Sarah, sorry i have not been intouch recently. I have been inputing the boring old VAT. I think Rosie is right about being useful. It is the whole reason teachers take up the profession, to make a difference and be useful. As for early retirement, you will still remain useful. Just think of all those things you have always wanted to do but never had the time. I bet, like me you have lots of photos that have never seen the light of day? If you haven’t got one already, create a montage for that wall that has always looked empty. I guess by now Bob is on summer break? We can not begin to imagine your lives but to the best of our ability you are always in our thoughts and you especially Sarah are an inspiration to us all. Take care Lots of Love Denyse and Tony (Hopkins)

]]> Comment on Up and Down by Jane Sault http://www.edweb.co.uk/sarah/?p=328&cpage=1#comment-193 Jane Sault Thu, 04 Jun 2009 15:11:01 +0000 http://www.edweb.co.uk/sarah/?p=328#comment-193 Hi Sarah, Would definitely concur with Suzie's comment (not that I know anyhting about retirement yet!) Please don't try to keep a brave face all the time - it must be exhausting. I'm so pleased that oyu had that nice lady to chat to - I'm sure you'd already done half of her work by turning up with a list of positives etc. I certainly hope that you and Bob can get a quality holiday in this summer and if you would like to make an overnight stop or two here you would be more than welcome. Love Jane x Hi Sarah,
Would definitely concur with Suzie’s comment (not that I know anyhting about retirement yet!) Please don’t try to keep a brave face all the time - it must be exhausting. I’m so pleased that oyu had that nice lady to chat to - I’m sure you’d already done half of her work by turning up with a list of positives etc.

I certainly hope that you and Bob can get a quality holiday in this summer and if you would like to make an overnight stop or two here you would be more than welcome.

Love Jane x

]]> Comment on Up and Down by Suzie http://www.edweb.co.uk/sarah/?p=328&cpage=1#comment-190 Suzie Fri, 29 May 2009 21:24:57 +0000 http://www.edweb.co.uk/sarah/?p=328#comment-190 Hello Sarah, Lots of positives there really weren't there?! I can identify with the brainstorming bit and it does help, you're right. Good luck with the retirement plans and don't worry about not being 'useful'. Once you have taken the final step and left teaching you will know that you can now concentrate on continuing to get better and staying in remission. Then you'll find a certain relief that comes from having no specific deadlines to meet. And I'm sure people will be knocking on your door asking if you could help with this, arrange that etc. I took early retirement and I've never been busier!! All the best and I'll look out for the next blog. Suzie Hello Sarah,

Lots of positives there really weren’t there?! I can identify with the brainstorming bit and it does help, you’re right. Good luck with the retirement plans and don’t worry about not being ‘useful’. Once you have taken the final step and left teaching you will know that you can now concentrate on continuing to get better and staying in remission. Then you’ll find a certain relief that comes from having no specific deadlines to meet. And I’m sure people will be knocking on your door asking if you could help with this, arrange that etc. I took early retirement and I’ve never been busier!! All the best and I’ll look out for the next blog.
Suzie

]]>