Just to let you know that my bone marrow results were also very good - they were struggling to find a plasma cell. My consultant is going to discuss my case at one of the meetings she goes to with people from Leicester and Kettering, to see whether we should be considering any other treatment, maintenance therapy or just go for a ‘wait and see’ policy. There is a new mini type of transplant with a non-related donor being trialled elsewhere at the mo, as a reinforcement type of treatment, but it has various pros and cons - I will wait and see what she says. Difficult to think about more treatment at the mo. You will be pleased to know that she used my case in a recent lecture she gave - fame at last!
I’m trying to be more active, and have started doing regular short walks and some stretching exercises to strengthen my muscles, which are weedy to say the least. Did prune my buddleia today, but am exhausted now! I am still finding it hard to shake off the tiredness and the indigestion. I think the latter will improve when I finish some of the tablets - another month of Acyclovir and folic acid, just a few more days of magnesium and a couple of weeks of an anti-fungal drug which I’ve just been prescribed - my mouth and tongue have been a bit sore. All of these drugs can impact on the digestion. Unfortunately I do need to start taking my Bonefos again (maintenance drug which strengthens bones) and they are also indigestible! I will gradually reintroduce them when I come off the magnesium. I’m getting a referral to a nutritionist as well so that might help me to sort out my diet. Did my last inhalation of the chest antibiotic, so that’s good!
Nothing much else to report, so will update when I next have news.
March 4th, 2009 at 5:36 pm
Hi Sarah, we are all so very pleased for you. I have been reading your blogg when i am able to and have been blown away with your honesty and down to earth way of handling such a personal and scarey topic. I for one could not have recorded such a detailed diary, I would have found it too emotional.
This all confirms what i have always thought………. You have such a strong, giving and confident personality. This Blogg will help many others who suffer and it will ease their burden and help them when they don’t know where to turn for answers or comfort. Especially in the early hours of the morning when the rest of the house sleeps. Your blogg will help with their worries. Thinking of you always. Lots of love Denyse and Tony xx
March 10th, 2009 at 5:48 pm
Hi Sarah
Pleased to hear the news of your bone marrow. Hope to see you soon. With love Debbie
March 15th, 2009 at 1:35 pm
Hi Sarah
I’m so pleased to read of all your progress and the good test results. Once your indigestion is gone and you can enjoy your food, you’ll be flying!
Love Jane x